When faced with a diagnosis like mesothelioma, your world suddenly feels like it’s been turned upside down. But remember, you are not alone. There is a multitude of resources available to support you and your loved ones.
Your doctor should always be the first person you turn to when you have questions about your diagnosis or treatment. But we understand this time can feel overwhelming, so we’ve compiled a list of questions you may want to ask during future visits.
What type of mesothelioma do I have?
What stage is my cancer?
Has my cancer spread? How will that affect my prognosis?
What cell type do I have?
Should I get a second opinion?
What is my life expectancy?
How will this diagnosis affect my daily life? Will I be able to continue working?
What are the symptoms of mesothelioma?
How can I manage my symptoms?
Are there lifestyle changes, such as diet or exercise, that can help improve my quality of life?
What resources should I turn to for researching mesothelioma?
What is your experience treating the type of mesothelioma I have?
What are my treatment options? What are the success rates for cases like mine?
What are the risks associated with the various treatment options?
How effective are the different types of treatment you’re recommending for me?
How soon do I need to start treatment?
How long will treatment last?
Where can I go to receive the best treatment?
Will I have to travel for my treatment?
How many and what kind of doctors do I need? Who is my main point of contact?
How should I begin preparing for treatment?
Am I eligible for surgery? What if I’m not?
What are my surgical options?
Should I consider complementary treatment in conjunction with an orthodox medical approach?
What are some alternative treatments if surgery, chemotherapy, and radiation aren’t options in my case?
How do I find out about clinical trials and whether I’m eligible for them?
How do I vet clinical trials?
How do I stay up to date on relevant (experimental) treatment options?
What medications will I need to take? What are their side effects? Is palliative care available to alleviate these side effects?
How do I monitor my condition? How will I know if I’m getting better or worse?
Financial and Support Questions
On average, what medical costs I can anticipate?
Will my health insurance cover my treatment? What if they don’t?
What about other costs, such as travel expenses?
What kind of financial assistance is available to mesothelioma patients, if any?
How should I file my medical records and bills?
What support resources are available to me or my family?
Why are veterans more likely to be diagnosed with mesothelioma?
Should I seek treatment through the VA?
Will my medical bills be covered by the government?