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Mesothelioma Hotline
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Questions About Mesothelioma

This image depicts a doctor talking about mesothelioma.If you’ve received a mesothelioma diagnosis from an oncologist, odds are this was a traumatic and intimidating time for you and your family. Sometimes when this happens, a person can find it challenging to get their thoughts in order efficiently to ask the right questions and get the resources they need. What are the best steps, and how do you get there? Fortunately, there are helpful resources available to aid and support patients during these times.

After you’ve been diagnosed with mesothelioma, having an in-depth talk with your doctor about what comes next is vital. They’ll be able to clarify any questions you may have on the diagnosis, support, and treatment. To help this process along, we’ve compiled a list of essential questions you may want to ask during doctor visits.

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Diagnosis Information

This picture shows a doctor talking to a patient.
After you’ve received the diagnosis, there’s still more for you to learn about your specific condition. Just in case there’s any confusion on where to begin, asking the following questions will ensure you have a solid base of knowledge in regards to your unique situation.

Financial and Support Questions

This picture shows lawyers talking to a mesothelioma patient.
With a cancer diagnosis comes subsequent specialist visits, treatments, and therapies. It’s essential to gauge the financial aspects that can impact your treatment plan. Knowing this information will make it easier for you or someone you trust to plan accordingly and get you the support you need.

  • On average, what medical costs can I anticipate?
  • Will my health insurance cover my treatment?
  • What if they don’t?
  • What about other costs, such as travel expenses?
  • What financial assistance is available to mesothelioma patients?
  • How should I file my medical records and bills?
  • What support resources are available to me or my family?

Treatment Information

Image shows a doctor administering medication to a patient.Your oncologist will put together a treatment plan based on several health factors. Overall general health, cell type and stage of the disease all have a significant impact on what your doctor may recommend. Clear up any questions or doubts you may have by inquiring the following and having a conversation about it with your mesothelioma specialist.

  • What is your experience treating the type of mesothelioma I have?
  • What are my treatment options?
  • What are the success rates for cases like mine?
  • What are the risks associated with the various treatment options?
  • How effective are the different types of treatments you’ve recommended?
  • How soon do I need to start treatment?
  • How long will it last?
  • Where can I go to receive the best treatment?
  • Will I have to travel to get it?
  • How many and what kind of doctors do I need?
  • Who is my main point of contact?
  • How should I begin preparing for treatment?
  • What are my surgical options?
  • Am I eligible for surgery, and what if I’m not?
  • Should I consider complementary treatment?
  • What are some alternative treatments?
  • Can I combine treatments and therapies?
  • What if chemotherapy, radiation, and immunotherapy aren’t options?
  • How do I find out about clinical trials and my eligibility?
  • How do I vet clinical trials?
  • How do I stay up to date on relevant (experimental) treatment options?
  • What medications will I need to take?
  • What are their side effects?
  • Is palliative care available to alleviate these side effects?
  • How do I monitor my condition?
  • How will I know if I’m getting better or worse?

There are treatment options for all patients. It’s important to keep searching until you find the right doctor, medication or treatment plan.

 

Video Transcript

“I think the message is two things: one, there is still a nihilistic attitude towards mesothelioma. If you don’t go to a place where people are dealing with mesothelioma, you’re going to be told you have no treatment options. They have to look and search, unfortunately, for information. So I say to patients don’t give up until you find more information. It’s not unusual for me to come across patients who have been told nothing can be done.”

Wickii Vigneswaran, MD, MBA, FACS | Thoracic Surgeon | Loyola University Medical Center

 

Veteran Concerns

This image shows several veterans standing next to each-other.Are you a veteran that’s been diagnosed with mesothelioma? There are a few concerns that will differ in this situation. Here are some questions for veteran patients to consider.

  • Why are veterans more likely to be diagnosed with mesothelioma?
  • Should I seek treatment through the VA?
  • Will my medical bills be covered by the government?

A mesothelioma diagnosis is a difficult time for the patient and their family members that’s usually full of questions and concerns. Make sure to have several conversations with your doctor regarding any issues you may have, and don’t hold back. If you still have doubt after these talks with your oncologist, you can always get a second opinion.

Diagnosed with mesothelioma? You can alleviate some of your treatment costs. Learn about your legal compensation options.

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Mesothelioma Hotline

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Mesothelioma Hotline

We’re here for you every step of the way.

(205) 271-4100